Life, but not as you know it

• Focus 24/7
• Low GI
• Carb counting
• Health and fitness focus
• Long term benefit over short term pleasure
• Just do it!
• Believe in yourself

Sometimes I think I should become a personal trainer or life coach. But I am a mum to a child with type 1 diabetes and this is my daily mantra – both for myself and my family. We have all embraced a healthy lifestyle – which for the most part makes managing diabetes easier. But it isn't easy.

Freya is now 7 years old. She was diagnosed with type 1 diabetes nearly 7 years ago. Her pancreas stopped working properly and that was that. There was nothing we could do to change it and nothing we could have done to prevent it. Type 1 diabetes has no cure and is not preventable in anyway.

Each night for the past 7 years my husband, mother or I have tested Freya at around 11pm, 2am and again before 5am. We do this as for people with type 1 it is possible to have unexplained high (hyperglycemia) or very low blood glucose levels (hypoglycemia) overnight. The impact of long term high blood glucose levels can mean loss of limbs and all sorts of serious medical conditions (such as loss of sight, heart or kidney failure). The impact of low blood glucose levels is more immediate – in mild cases it makes you feel drowsy, confused and often very hungry. In severe cases it can cause unconsciousness, brain damage, heart failure or death – sometimes within a few hours.

So whilst some people have very few hypoglycemic (low) episodes at night, some people (and more often kids as they are growing rapidly) have them more often. The risks are real and something that adults with type 1 and parents, partners and carers of people with type 1 diabetes have to live with every day.

So, yes, I know, all of this sounds very dramatic. And it can be. Children and adults die from complications due to diabetes every week in Australia, but most live happy, healthy and fully functional lives.

What we would love though is a cure. We would also love a good night's sleep on a regular basis.

There is technology available that could help people with diabetes, though at great expense. The government is considering subsidising up to 4000 children under 18 in a pre-election promise which will hopefully be put through parliament in the coming months. Whilst this is a great start, there are currently over 120,000 people in Australia with type 1 – so that is a lot of people who are not going to be helped in any way.

That is also 120,000 people and their families who would dearly love a cure. Whose lives have been forever changed by a genetic fault – that still has scientists baffled as to its cause.

My daughter has had at least 5 injections of insulin a day; over the past 7 years that's over 12,000 injections. She has also tested her blood (via her finger tips) up to 10 times a day in the same period (over 25,000 finger pricks to draw blood). She is 7 and does this to stay alive. Sometimes she gets frustrated, but mostly just gets on with it.

My daughter is amazing and truly an inspiration for me. She is the reason that each year, for the past 6 years, that I have organised a fundraising or awareness raising event for diabetes. I want to find a cure. But if I cannot find a cure, I want Freya and all people with diabetes to live in a country where people don't judge them for having diabetes. Freya is smart, healthy, super fit and fun to be around. She can and will do whatever she wants in life.

Diabetes can be a life threatening and life shortening disease but if we all band together we can make a difference. Please donate if you can or simply share this to help raise awareness about diabetes.

I am organising the Sunshine Coast JDRF One Walk at Cotton Tree Park on the 28^th August 2016. Registration is from 8.30am and the walk starts at 9.30am (there are 2km and 5km options available – and well behaved dogs on leads are welcome). For more information click here

To donate to the One Walk click here

To donate to JDRF click here

To donate to Diabetes Queensland click here

I will be updating my blog more regularly so please follow by email or check out my instagram page (@invigor8) where I share new blogs and images.

Baby, no more

Baby, no more

Tonight while I was cooking dinner I realised that I am done. With babies that is. No more for me. I have always said I would like another; however as I stood there at the stove, with my husband driving my two kids home from their swimming lessons, I realised that my life is pretty good just the way it is. Of course if there was an accident, I am sure I would welcome a baby. But right now, I can live without ever having to breastfeed for 6 – 24mths, change nappies, clean poo/wee of EVERYTHING, wake throughout the night constantly (other than every 2 – 3 hours for my type 1 daughter), and generally have a screaming baby be MY responsibility.

I have never been fond of babies. Don’t get me wrong, I love being a mum. And I have always wanted to be a mum. I loved my own babies and thought they were beautiful. But for the most part, other people’s babies are pretty ugly and boring. My sisters haven’t had kids yet, so maybe that will be different. I am fairly maternal in my behaviour, so people seem to insist on handing me their babies, which I generally try to resist. Once they are over 12 months I am great; but before that, not so much.

People always ask if you have finished having babies. I don’t think you can answer that question without getting the opposite response from the asker.  Of my two closest friends, one is done and one wants another. And yet when someone asks “Are you going to have another?” The friend who replies, “Oh, no I have 4, I am done”, seems to always get, “You should never rule it out” and the friend who says, “Yes, I would like another at some stage”, hears “You are so lucky to have 3 wonderful kids”. Okay then.

Of course the most interesting responses I have had when discussing the possibility of a new baby have come from my two kids. My 6 year old son and 4 year old daughter love the idea of a baby. But it is when we get down to logistics that things become interesting. Both of my kids co-sleep (still) from time to time (the “time” being almost every night from around midnight, plus when my husband is away for work). So when we discussed where the baby would sleep this caused great concern and agreement that is was probably best that we stayed at just two kids, as mummy only had two armpits for cuddles!

I am not sure what I will say when asked if I am having any more kids. It is still too new for me. I only shared my newfound knowledge with my husband over dinner. He looked quite amused really, as he was already in the “done” camp.

All of that said, I do reserve the right to change my mind.

Is it okay to interfere?

Today as I stood on top of Mt Coolum, I was extremely proud of both my kids, my 3 year old daughter had just walked all the way to the top on her own and my 6 year had been wonderfully encouraging. As we always do, we wondered over to the far side of the top of the mountain to find a little shade and enjoy the view, a snack and water. 

As we sat there my son pointed to a girl and asked “Why is she drawing on the rock?” I looked over and a young girl of 10 or 11 years was carving her name into a large rock with a pocket knife. Mt Coolum is a National Park. Obviously graffiti almost anywhere is illegal; however, this is a National Park! And here was a young girl, with a knife, carving her name into a rock… in front of her father and sister. And in front of my 3 year old and 6 year old and every other child and teenager that was on top of the mountain today – and it was a beautiful Sunday and there were lots of people.

I looked at my husband, and said “Sorry, I am going to have to say something.” I have been known to do this with smokers in restaurants; however this was my first “wildlife warrior” moment. I politely asked the girl if she would mind stopping carving into the rock as it was graffiti and was not permitted in a national park. She looked at her dad who told her, “It’s okay; there are lot’s names already up here”. I explained that it wasn’t okay, and it was ruining the environment for everyone. The father was extremely unimpressed with my interfering (which I had expected) and stopped his daughter, telling her that it looked good already. He huffed and puffed many things under his breath and moved away with his kids. 

Our family packed up our rubbish and got ready to head back down. We started across the top of the mountain to begin our decent when I decided to run back and take a photo of the graffiti. To my shock, the dad was standing beside his daughter as she finished her name and date in the rock. This time I didn’t say anything – what could I say without really crossing the line. I went and took some photos of other carved names on top of the mountain, and there are a lot of them.

On the drive home we had a discussion with our kids about graffiti and the impact on the environment. We talked about why some graffiti is art and other is not. I was a little bit upset with father’s reaction; however my husband reminded me that I had basically disciplined his child in front of him. 

Sitting here writing this, I am still not sure what I would have done differently. Where do our kids learn about acceptable behaviour? I know I would be furious if a stranger corrected my parenting; however I felt that when we move into breaking the law and damaging the environment that it is time to say something. How do children learn about appropriate boundaries without parental direction?

What would you have done?

Supersized fast-food fury?

This week McDonald's was found in breach of industry standards over a website which was seen to be marketing to children. Personally I do not mind most of the marketing they do. The marketing person inside of me finds it interesting, the charity worker inside of me worries a little about those who are weak to these messages, but in the end, I truly believe that it is up to the parents to teach their kids about what they eat and why they eat it, because those lessons will be with them for life.

The SMH reported:

The Advertising Standards Bureau upheld the Cancer Council's complaint about the Happy Meal website, finding that it had breached several clauses of the voluntary code for advertising to children, including promoting unhealthy food choices by using characters and online interactive games aimed at children.

You can read more: http://www.smh.com.au/national/maccas-website-breached-ad-rules-20120708-21pjv.html#ixzz207DA9QXB

Even having worked for charities targeting this behaviour in the past, I have started to rethink why this causes so much passion from so many. I am struggling to understand how cute characters on a game, on a website are encouraging children to eat bad food. I do understand pester power. I have studied it at university and I most certainly have seen the impact of it on marketing campaigns I have worked on.  

I also have a 6 yr. old and a 3 yr. old. So far, I control what goes into my children’s mouths – to a large degree. They love having McDonald’s. They have probably had it 3 times in the last year, and their meals are chosen by me (apple bag, no chips, water instead of soft drinks). I know exactly what it does to their little bodies overnight too. My 3 year old has type 1 diabetes; I test her blood glucose every few hours during the night. On a McDonald’s night she usually needs extra insulin and her levels continue to get higher and higher overnight. McDonald’s is a treat and my kids understand this.

I would like to eat bad food every day. I love chocolate. I love ice-cream.  I know what happens if I eat too much – and it is not just about gaining weight. I don’t think as clearly, I get tired and generally my health suffers. Over the past few years I have discussed the impact of our diet with my children. Mostly, they don’t nag me for “sometimes” foods. 

So would it be easier for parents if there were no lollies and foods targeting kids? I guess so. There would be fewer arguments and maybe less children eating as many “sometimes” foods. But what happens when the kids are old enough to buy their own food? What happens when they get to make their own choices? Clearly the concern is that we have an obesity epidemic growing in Australia with unhealthy parents unable to educate their children, which is leading to overweight or unhealthy children.

This week is National Diabetes Week. This week the focus is all about type 2 diabetes and how to prevent it. Type 2 diabetes is largely preventable through diet and exercise; unlike type 1 diabetes which is an auto-immune disease (and cannot be prevented). I think we need to start teaching our children from a very young age about good food choices. I think we need to help them understand why good foods can make them feel good for longer and why “sometimes” food, whilst yummy, are only for just that – for sometimes. I believe that the challenge for us is how we get parents to understand food labels – not just fast food, but all food. We need to understand the impact of the ingredients of what we eat and what it means to our bodies. The healthy canteens campaigns for schools within Australia are a great start.

What do you think? Would it be easier to just ban junk food advertising of all kids and remove cartoon packaging and kids’ toys with purchases? What else can we do to help parents?

What does it mean to live with type 1 diabetes?

November is Type 1 Diabetes Awareness month. If you have ever wanted to ask me a question about my cheeky monkey or her Diabetes now is your chance (well... really you can ask anytime...).

It isn't pink or sexy; it doesn't involve boobs, football players, or cute shirts (but we are always open for assistance for our cause).

It's about 2am blood tests, low blood sugars, high blood sugars, counting carbohydrates and giving 4 or 5 needles a day.

It is about the constant surprise of how resilient your daughter is. Of how her positive attitude makes her life seem normal and making her life as normal as possible makes everything you do okay.

There is always the fear of hypoglycaemia. And the need to plan every small activity due to the impacts on blood sugar control. But the rewards are worthwhile. In the short term they can be better moods and in the long term, a healthier life.

Our future will likely include our cheeky monkey learning to cope with not being invited to many sleepovers or play dates because other people may be scared of needles and 2 - 3 hourly blood tests. But that is okay, because we can have them at our home, and not everyone is afraid.

It's about carrying an enormous bag at all times - a complete chemist and food store in your handbag for all emergencies – fortunately big bags are in fashion now! It's about putting up with ignorant people who say things like "you're lucky its only diabetes", "don't you wish you had breastfed her as a baby" or “she isn’t fat?” But it is also remembering that you didn’t always know everything about diabetes, and frankly, wouldn’t that be wonderful to still be the case.

It’s about the heartbreak when your daughter was diagnosed. It’s about watching her sleep at night and hoping that she will wake in the morning. It’s about wishing it was you and not her.

It’s about waiting for a cure...

(Inspired by and partly adapted from Karina Caton and Emma Savage)